Study finds specific biomarkers to predict Sickle Cell Anemia disease severity
To identify hematological, biochemical, and metabolic biomarkers associated with sickle cell anemia (SCA) severity and to assess machine learning models' ability to predict disease severity accurately.
Study Indicates Potential Link Between Chronic Transfusion and Higher Nocturnal Hemoglobin Desaturation (NHD) Rates in Adults With SCD
Assess prevalence of nocturnal hemoglobin desaturation (NHD) among adults with severe sickle cell disease (SCD) who receive chronic red blood cell exchange (RCE) transfusions.
Study indicates Adverse childhood experiences (ACEs) are associated with a higher prevalence of asthma among children and adolescents with sickle cell disease.
To examine the relationship between Adverse Childhood Experiences (ACEs) and asthma among children and adolescents with Sickle Cell Disease (SCD).
Children with sickle cell disease may experience nocturnal hypoxemia even without sleep apnea.
Retrospective study reviewed 81 pediatric SCD patients referred for polysomnography to explore factors associated with nocturnal hypoxemia (NH), independent of obstructive sleep apnea (OSA).
Recent report suggests buprenorphine may offer a viable option for chronic pain management in sickle cell disease during vaso-occlusive crises.
A recent study explored real-world experiences from a single-center case series of adults with sickle cell disease transitioned from full opioid agonists to buprenorphine for chronic pain management.
The Role of Primary Care Physicians in Back-to-School Preparations
Primary care physicians are essential partners in back-to-school preparation for students living with sickle cell disease.
How Community Health Workers Support Children with Sickle Cell Disease
Community Health Workers play a vital role in supporting families of children with sickle cell disease as they transition back to school by providing personalized education and outreach.
The Role of Nurse Coordinators in Sickle Cell Disease Care
Myth: Care coordinators, including nurses, are not essential — patients or families can manage coordination on their own.
Best Practices for Improving Healthcare Accessibility for Sickle Cell Disease Patients
Myth: Comprehensive sickle cell disease care can be effectively managed by a single provider without the need for a multidisciplinary or team-based approach.
Transitioning Patients with Sickle Cell Disease to Adult Care
Myth: The transition from pediatric to adult healthcare is typically unimportant and has little impact on an adolescent’s overall development.
The Need for Primary Care Physicians and Nurses in Sickle Cell Disease Care
Myth: Primary care has a limited role in sickle cell disease care.
The Need for Nurses and Community Health Workers in Sickle Cell Disease Care
Myth: General clinical training is enough; there’s no need for disease-specific workforce development in sickle cell care.
Real-World Impact of Well-Trained Providers
Myth: Technology like telemedicine or digital tools doesn’t impact sickle cell disease care.
Sharing Personal Stories: Kelsey and Shandrea
Myth: There are no new learning opportunities or advanced training programs for clinical providers in sickle cell disease care.
Sharing Personal Stories: Nicholas and Kellyn
Myth: Only bone marrow transplants from matched donors can cure sickle cell disease.
Sharing Personal Stories: Joao and Devonte
Myth: Gene therapy for sickle cell disease is science fiction and not available to patients.
Surveillance and Monitoring
Myth: Public health efforts cannot reduce gaps in sickle cell disease care.
Healthcare Access and Transition Support
Myth: Workforce development programs for sickle cell disease are unnecessary because existing healthcare training is sufficient.
Education, Awareness, and Multifaceted Care
Myth: Public health professionals have a limited role in sickle cell disease care.
Newborn Screening and Social Support
Myth: Community health workers are not qualified to support sickle cell disease care.
Addressing Sickle Cell Disease Knowledge and Infection Control
Myth: Standard infection control measures are sufficient for sickle cell disease patients.
Addressing Transiting to Adult Care and whether Sickle Cell Disease is Contagious
Myth: Sickle Cell Disease is a contagious blood-borne illness.
Addressing Absenteeism and Hydroxyurea
Myth: Hydroxyurea is only for patients with severe sickle cell disease.
Pain Management and a Prepared Workforce
Optimal sickle cell disease treatment requires a multidisciplinary team delivering comprehensive care.