Survey of U.S. Clinicians’ attitudes toward palliative care (PC) to enhance the quality of life for patients with sickle cell disease (SCD)
To assess clinician attitudes, referral practices, and barriers affecting the integration of PC in SCD management.
Transitioning Patients with Sickle Cell Disease to Adult Care
Myth: The transition from pediatric to adult healthcare is typically unimportant and has little impact on an adolescent’s overall development.
The Need for Primary Care Physicians and Nurses in Sickle Cell Disease Care
Myth: Primary care has a limited role in sickle cell disease care.
The Need for Nurses and Community Health Workers in Sickle Cell Disease Care
Myth: General clinical training is enough; there’s no need for disease-specific workforce development in sickle cell care.
Sharing Personal Stories: Kelsey and Shandrea
Myth: There are no new learning opportunities or advanced training programs for clinical providers in sickle cell disease care.
Surveillance and Monitoring
Myth: Public health efforts cannot reduce gaps in sickle cell disease care.
Healthcare Access and Transition Support
Myth: Workforce development programs for sickle cell disease are unnecessary because existing healthcare training is sufficient.
Education, Awareness, and Multifaceted Care
Myth: Public health professionals have a limited role in sickle cell disease care.