Our Mission
To tirelessly research, inform, hear, respect, treat, and support every person touched by sickle cell disease.
We elevate groundbreaking research, innovative healthcare treatments, and a community of support for a future where sickle cell disease is a livable, non-threatening condition.
About FSCDR
The Foundation for Sickle Cell Disease Research (FSCDR) is reshaping the future of sickle cell care through research, healthcare and support.
Founded in 2012 in Hollywood, Florida, FSCDR was the first center in the nation dedicated exclusively to sickle cell disease. We have grown to an extensive network of 15 Sickle Cell Disease Centers of Excellence across the state. Since our founding, we have demonstrated what is possible when you combine world-class medical expertise with a powerful mission.
We have trained healthcare providers across the nation through our workforce education programs. Our annual symposium unites Sickle Cell Warriors and leading researchers from around the world. But, our greatest achievement isn’t measured in statistics, it’s felt in the Sickle Cell Warriors who now live with less pain, fewer hospitalizations, faster recovery, more hope, and the knowledge that they have an entire organization fighting alongside them.
We envision a future where sickle cell disease is a livable, non-threatening condition so that every individual living with sickle cell disease can thrive. We are on a mission to treat, educate, support, and respect every person touched by sickle cell disease. Every patient we treat, and every supporter we educate brings us closer to that reality
What Sets Us Apart
We transform lives through innovative research, compassionate medical care, community building, and relentless action.
Specialized Expertise: Our Sickle Cell Disease Centers of Excellence are staffed by experts, including hematologists-oncologists, and nurse practitioners, who understand the complexities of sickle cell disease.
Research Leadership: We publish the Journal of Sickle Cell Disease in partnership with Oxford University Press and maintain one of the largest sickle cell registries in the nation with over 2,600 participants.
Community Connection: Our leadership includes Sickle Cell Warriors themselves, ensuring that every decision we make reflects the real needs and experiences of the community we serve.
Comprehensive Care: From infusion therapy and pain management to IEP support and disability support, we address every aspect of living with sickle cell disease.
Innovation Focus: Our patients gain access to groundbreaking clinical trials and experimental treatments that could transform their futures.
Meet Our President
Dr. Lanetta Bronté, MD, MPH, MSPH
President and Chief Health Officer
Dr. Lanetta Bronté is a visionary leader whose dedication to sickle cell disease research and care spans over four decades. As founder and president of FSCDR, she has transformed the landscape of sickle cell treatment by establishing the nation’s first standalone outpatient centers dedicated exclusively to sickle cell care. A nationally recognized researcher and health scientist, Dr. Bronté has served in prestigious roles, including Senior Medical Advisor to the CDC, Expert Panel Member for the National Institutes of Health, and former Associate Professor at the University of Miami Miller School of Medicine.
Under her leadership, FSCDR has become a beacon of hope for Sickle Cell Warriors nationwide, combining cutting-edge research with compassionate healthcare and competent support.
Leadership Team
Clinical Excellence and Compassionate Support
Our leadership team embodies the comprehensive approach that makes FSCDR unique, combining world-class medical expertise with deep community connection and operational excellence. Led by President and Chief Health Officer Dr. Lanetta Bronté, our team brings together distinguished physicians alongside committed supporters to advance breakthrough sickle cell treatments, cutting-edge research, compassionate care, and lasting change.
Board of Directors
Visionary Leadership Driving Transformational Change
The Foundation for Sickle Cell Disease Research is guided by an exceptional board of directors who bring together decades of expertise in medicine, law, finance and community action. Led by Chairman Avery A. Dial, Esq., our board combines the clinical insight of renowned physicians. Ensures unwavering dedication to our mission.
THEIR PAIN DOES NOT DEFINE THEM.
We are fighting a battle for people living with Sickle Cell Disease (SCD). The Foundation for Sickle Cell Disease Research (FSCDR) is the United States’ first outpatient center exclusively dedicated to the treatment of and innovative research for SCD. Florida has the highest population of individuals living with SCD in the U.S. In 2012, we opened the center in Hollywood, FL, offering focused care and collecting data through clinical trials. We utilize a human-centric, community-based, rigorously scientific approach to caring for our patients and finding better solutions to treat them.
For the past six years, we have grown strong roots in the South Florida community and have taken great strides toward our mission of resetting the narrative around SCD through specialized care and innovative research.
Our next challenge is building a state-of-the-art facility that provides ground-breaking treatment to more people living with SCD — offering more support to our patients, their families, and the broader sickle cell trait and support communities, while creating a center for collaborative research that encourages scientists, medical professionals, and physicians researching and treating SCD to work toward new, life-improving solutions.
Hope, Support, and Love for All
We are fighting a battle for people living with sickle cell disease, and we need you to join us.
Florida is home to the highest population of individuals living with sickle cell disease in the nation. Recognizing this critical need, we opened our doors in Hollywood, Florida, with a revolutionary approach that combined focused clinical care with rigorous data collection through clinical trials. Our patients aren’t statistics, they’re Sickle Cell Warriors whose lives are being transformed by care that truly sees them, hears them, and treats them with the dignity and expertise they deserve.
For over a century, since its discovery in 1910, sickle cell disease has been underfunded. Sickle Cell Warriors face emergency rooms that do not understand their pain and healthcare systems that dismiss their needs. Sickle Cell Warriors have waited far too long for the research and resources they deserve. We are changing that and we are inviting you to be part of the solution.
Your gift today funds hope, research, and life-changing care for Sickle Cell Warriors who have waited far too long.
Registry
By joining the Registry, you’ll help researchers better understand sickle cell disease, improve treatments, and advance care for future generations. You’ll also gain access to valuable educational resources and support.
SCD COE
The Sickle Cell Disease Centers of Excellence connect patients and families with the care they need. With 15 centers across Florida, we are making world-class, personalized, compassionate, and evidence-based care accessible to every Sickle Cell Warrior.
Donate
Your donation helps us deliver life-changing care to individuals and families living with Sickle Cell Disease. Every dollar supports specialized clinics and groundbreaking research that brings us closer to better treatments and one day, a cure.