The Patient Experience
Kelsey’s Story: Managing sickle cell disease through specialized care and a selfless donor
Kelsey’s frequent hospitalizations for pain crises and acute chest syndrome illustrate the severe impact of sickle cell disease on quality of life. Her story emphasizes the need for well-trained healthcare providers who can effectively manage complications using evidence-based treatments like IV fluids, oxygen therapy, and hydroxyurea.
Personal Accounts of FSCDR Patients:
“Great experience, the staff is very friendly, helpful. Whenever I am in pain, they make sure I am better before I leave.”
– Shandrea B.
Supporting Data: Evidence-based guidelines recommend hydroxyurea to reduce the frequency of pain crises and improve the quality of life for sickle cell disease patients.
Myth vs. Fact
Myth: There are no new learning opportunities or advanced training programs for clinical providers in sickle cell disease care.
Fact: A variety of innovative, evidence-based training programs and educational opportunities are now available for clinical providers seeking to enhance their expertise in SCD. The Foundation for Sickle Cell Disease Research (FSCDR) has developed a curriculum to equip medical, clinical, and public health professionals with the specialized knowledge, skills, and attitudes needed to serve individuals with sickle cell disease.
Click below to learn more and register
Resource: FSCDR Workforce Education