Newborn Screening and Social Support

Research and Data Insights

Public health professionals contribute to sickle cell disease management through newborn screening

Community health workers play a vital role in supporting sickle cell disease patients through social support and navigation

 

Myth vs. Fact

Myth: Community health workers are not qualified to support sickle cell disease care. 

Fact: Community health workers play a critical role in improving outcomes for sickle cell disease patients. 

They provide essential services such as navigating healthcare systems, offering social support, and educating patients about disease management. Programs like the Sickle Cell Disease Association of America Community Health Worker Training equip community health workers with specialized skills to address the unique needs of sickle cell disease patients, including case management, appointment reminders, and patient advocacy.