Research and Data Insights
A Study: Transition from Pediatric to Adult Care
There is a significant shortage of adult care providers with the requisite knowledge and skill set for sickle cell disease patients. This gap in expertise leads to a sharp increase in mortality following the transition from pediatric to adult care, with the ages of 15 – 24 experiencing a sevenfold increase in mortality. Specialized training can help bridge this critical gap.
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Myth vs. Fact
Myth: Sickle Cell Disease is a contagious blood-borne illness.
Fact: Sickle Cell Disease is not contagious. It is a genetic condition present at birth, caused by inheriting abnormal hemoglobin genes from both parents. If a child inherits one sickle cell gene from each parent, they are born with sickle cell disease. Unlike infectious diseases, it cannot be transmitted through contact, blood transfusions, or any other means. Think of it as hereditary, much like hair or eye color.
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