FSCDR’s Impact: Driving Change in Sickle Cell Care

The FSCDR Impact Report highlights and celebrates the heart of our mission—advancing research, supporting patients, and driving awareness for sickle cell disease. We are a dedicated community of advocates, researchers, and healthcare professionals working tirelessly to improve lives.

This report shares our journey and the inspiring efforts of those who go above and beyond every day. From funding groundbreaking research to providing essential resources, FSCDR continues to push boundaries in the fight against sickle cell disease.

Breaking Barriers: FSCDR’s
Year of Progress

Advancing Hope:

FSCDR’s Impact in Sickle Cell Care

At FSCDR, we are dedicated to advancing research and improving healthcare access for those affected by sickle cell disease. This impact report highlights our key achievements, including new research initiatives, educational programs, and partnerships that are transforming patient outcomes.

Stronger Together:
FSCDR’s Commitment to Change

Upcoming Symposia

Virtual Symposium on Gene Therapy

Join the Foundation for Sickle Cell Disease Research (FSCDR) for the March 2025 Virtual Symposium on Gene Therapy. FSCDR’s mission is to tirelessly research, inform, hear, respect, treat, and support all individuals with sickle disease and to make the disease a livable, non-threatening condition.

This symposium will attract unique individuals who are leading researchers, physicians, clinicians, stakeholders, advocates, and social workers with the common goal of finding better treatment and, ultimately, a cure for sickle cell disease.

Date: June 6-8 2025

Upcoming Workforce Curriculum 

13/02/2026

Expert Insights in Action: Point-of-Care Lab Interpretation for Sickle Cell Disease (6-week curriculum Session 5)

Target Auidence: Point-of-Care Lab Interpretation
3:00 PM
23/02/2026

Precision in Practice: Laboratory and Imaging Advances in Sickle Cell Disease

Target Auidence: Laboratory and Imaging Advances
2:00 PM
19/02/2026

Strengthening Minds, Strengthening Care: Mental Health and Support in Sickle Cell Disease

Target Auidence: Mental Health and Support
2:00 PM
20/02/2026

Expert Insights in Action: Hands-On Pediatric Sickle Cell Disease Management (6-week curriculum Session 6)

Target Auidence: Hands-On Pediatric Management
3:00 PM
06/02/2026

Expert Insights in Action: Empowering Patients With Sickle Cell Through Mental Health Strategies (6-week curriculum Session 4)

Target Auidence: Empowering Patients with Mental Health Strategies
3:00 PM
23/01/2026

Expert Insights in Action: Creating a Skilled Workforce for Sickle Cell Care (6-week curriculum Session 3)

Target Auidence: Creating a Skilled Workforce
3:00 PM
16/01/2026

Expert Insights in Action: Driving Participation in Sickle Cell Programs and Trials (6-week curriculum Session 2)

Target Auidence: Driving Participation in Programs and Trials
3:00 PM
19/12/2025

Expert Insights in Action: Practical Applications for Sickle Cell Disease Care in Adults (6-week curriculum Session 1)

Target Auidence: Practical Applications in Adult Care
3:00 PM
16/02/2026

Expert Insights for Next-Level Pediatric Sickle Cell Care: From Newborn Screening to Advanced Treatment

Target Auidence: Pediatric Care (Newborn Screening to Advanced Treatment)
2:00 PM
09/02/2026

Precision in Practice: Laboratory and Imaging Advances in Sickle Cell Disease

Target Auidence: Laboratory and Imaging Advances
2:00 PM
02/02/2026

Strengthening Minds, Strengthening Care: Mental Health and Support in Sickle Cell Disease

Target Auidence: Mental Health and Support
2:00 PM
12/01/2026

Transforming Sickle Cell Care With Prevention, Advocacy and Community Engagement

Target Auidence: Prevention, Advocacy and Community Engagement
2:00 PM
20/01/2026

Shaping the Future of Sickle Cell Care: Training, Policy and Innovation

Target Auidence: Training, Policy, and Innovation
12:00 PM
15/12/2025

Expert Insights for Next-Level Sickle Cell Disease Care in Adult Patients

Target Auidence: Adult Patients
2:00 PM
20/05/2025

The Latest Advances in Precision Diagnostics, Imaging, and Lab-Based Sickle Cell Disease Monitoring

12:00 PM
21/05/2025

Expert Approaches to Comprehensive Sickle Cell Disease in Adult Patients

Target Auidence: Public
2:30 PM
23/05/2025

Expert Guidance for Navigating Comprehensive Sickle Cell Disease Care for Pediatric Patients

1:00 PM
03/06/2025

Advancing Sickle Cell Disease Care Through Public Health and Community Interventions

1:00 PM
11/06/2025

Advocating for Effective Training and Policy to Stimulate Future Research and Innovation for Sickle Cell Disease

1:00 PM
17/06/2025

Empowering Patients With Sickle Cell Disease: Expert Approaches to Navigation, Outreach, and Support

6:00 PM
23/06/2025

Empowering Patients With Sickle Cell Disease: Expert Approaches to Navigation, Outreach, and Support

6:00 PM
25/06/2025

The Latest Advances in Precision Diagnostics, Imaging, and Lab-Based Sickle Cell Disease Monitoring

4:00 PM

Stay Informed. Stay Empowered.

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