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Foundation for Sickle Cell Disease Research Joins New Sickle Cell Disease Coalition, Issues Call to Action to Improve Treatment and Care

Sickle Cell Disease Coalition launches a call to action on disease that has been neglected for far too long (WASHINGTON, September 12, 2016) — Today, FSCDR joins other leading patient advocacy groups, researchers, clinicians, policymakers, industry, and foundations in a collective effort to improve sickle cell disease (SCD) care, early diagnosis, treatment, and research, both…

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FSCDR Presents Positive Results from Case Study of Voxelotor (GBT440) in Sickle Cell Disease Patient

Additional Photographs Added as of April 5, 2023. Some text has been updated to reflect present-day. HOLLYWOOD, Fla., — Oct. 31, 2017 — On Oct. 28, Lanetta Bronté-Hall, MD, MPH, MSPH presented a positive results case study for a sickle cell patient with severe and symptomatic anemia, after receiving voxelotor, at the 45th Annual…

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FSCDR’s Experience with Voxelotor (GBT440) Treatment in Patients with Severe Sickle Cell Disease

ATLANTA — Lanetta Bronté, M.D., M.P.H., M.S.P.H., founder and chief health officer of the Foundation for Sickle Cell Disease Research (FSCDR) in Hollywood, Fla., presented results from seven adult sickle cell disease patients with severe anemia and multiple co-morbidities who were not eligible to participate in Global Blood Therapeutics’s (GBT) Phase 3 HOPE (Hemoglobin…

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FSCDR receives land parcel to build first sickle cell hospital in Miami-Dade County

MIAMI — On Tuesday the Miami-Dade County Board of County Commissioners Meeting passed Resolution 14A2, declaring surplus county-owned land and approving a lease for Florida Sickle Inc. (d/b/a/ Foundation for Sickle Cell Disease Research). The Resolution is sponsored by Commissioner Audrey M. Edmonson and co-sponsored by Commissioners Daniella Levine Cava and Barbara J. Jordan. FSCDR…

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