How Community Health Workers Support Children with Sickle Cell Disease
Community Health Workers play a vital role in supporting families of children with sickle cell disease as they transition back to school by providing personalized education and outreach.
The Role of Nurse Coordinators in Sickle Cell Disease Care
Myth: Care coordinators, including nurses, are not essential — patients or families can manage coordination on their own.
Best Practices for Improving Healthcare Accessibility for Sickle Cell Disease Patients
Myth: Comprehensive sickle cell disease care can be effectively managed by a single provider without the need for a multidisciplinary or team-based approach.
Sharing Personal Stories: Nicholas and Kellyn
Myth: Only bone marrow transplants from matched donors can cure sickle cell disease.
Sharing Personal Stories: Joao and Devonte
Myth: Gene therapy for sickle cell disease is science fiction and not available to patients.
Newborn Screening and Social Support
Myth: Community health workers are not qualified to support sickle cell disease care.
Addressing Sickle Cell Disease Knowledge and Infection Control
Myth: Standard infection control measures are sufficient for sickle cell disease patients.
Addressing Transiting to Adult Care and whether Sickle Cell Disease is Contagious
Myth: Sickle Cell Disease is a contagious blood-borne illness.