Clinical Trials Reshape the Future of Sickle Cell Care
Every major advancement in sickle cell disease (SCD) care has been made possible through clinical trials. By participating in research, Sickle Cell Warriors play a vital role in advancing science while gaining access to the latest treatment options.
At the Foundation for Sickle Cell Disease Research (FSCDR), clinical research is a cornerstone of our mission. We collaborate with leading researchers, healthcare providers, and pharmaceutical partners to conduct clinical studies designed to improve outcomes for individuals living with sickle cell disease.
Why Clinical Trials Matter
Clinical trials are essential for developing safer and more effective treatments.
Participating in research provides:
- Access to promising new therapies
- Close monitoring by specialized medical teams
- Opportunities to contribute to discoveries that benefit future generations
Every clinical study follows strict safety and ethical standards designed to protect participants.
Participation is always voluntary.
Advancing Sickle Cell Research Together
The future of sickle cell treatment depends on research and the participation of Warriors willing to help move science forward.
At FSCDR, we are committed to accelerating discovery, improving treatment options, and ensuring that every Sickle Cell Warrior benefits from the next generation of medical breakthroughs.
Our Commitment to Patient-Centered Research
At FSCDR, our research programs are designed with patients and families in mind.
Before joining any clinical trial, participants receive detailed information about the study’s purpose, procedures, potential benefits, and risks. Our research team ensures that participants feel informed and supported throughout the entire process.
Patients can withdraw from a study at any time.
Our goal is to ensure that clinical research is transparent, ethical, and empowering for every participant.
Clinical Trials at FSCDR
FSCDR is actively involved in multiple clinical studies investigating new treatments and therapies, as well as long-term outcomes for people living with sickle cell disease.
Below are clinical trials associated with FSCDR.
| Study Title |
|---|
| A Study to Evaluate How Well Etavopivat Works in People With Sickle Cell Disease |
| Safety of Anumigilimab (CSL324) in Adults With Sickle Cell Disease (SCD) |
| Research Study Investigating How Well NDec Works in People With Sickle Cell Disease |
| A Study of Etavopivat in Adults and Adolescents With Sickle Cell Disease (HIBISCUS) |
| A Study of IMR-687 in Adult Participants With Sickle Cell Anemia (Homozygous HbSS or Sickle-β0 Thalassemia) |
| An Extension Study of IMR-687 in Adult Patients With Sickle Cell Anemia |
| A Study to Learn About Sickle Cell Disease In Adult Patients |
| A Study of the Effect of IW-1701 (Olinciguat), a Stimulator of Soluble Guanylate Cyclase (sGC), on Patients With Sickle Cell Disease (SCD) |
| Oxbryta® Product Registry An Observational Study Designed to Evaluate the Effect of Oxbryta in Individuals With SCD |
| Bone Marrow Transplantation vs Standard of Care in Patients With Severe Sickle Cell Disease (BMT CTN 1503) |
| Study of SANGUINATETM In the Treatment of Sickle Cell Disease Patients With Vaso-Occlusive Crisis |
| STRIDE Biorepository |
| A Research Study Looking at Long-term Treatment With Etavopivat in People With Sickle Cell Disease or Thalassaemia |
| Dose Escalation Study of PF-07209326 in Healthy Participants and Participants With Sickle Cell Disease |
| To Assess Safety, Tolerability and Physiological Effects on Structure and Function of AXA4010 in Subjects With Sickle Cell Disease |
| Safety, Efficacy, and Pharmacokinetics of CSL889 in Adults and Adolescents With Sickle Cell Disease During Vaso-Occlusive Crisis |
| A Study to Evaluate the Safety and Efficacy of Crizanlizumab in Sickle Cell Disease Related Priapism |
| ATHN Transcends: A Natural History Study of Non-Neoplastic Hematologic Disorders |
Interested in Participating in a Clinical Trial?
If you or a loved one is living with sickle cell disease, you may be eligible to participate in clinical research.
Registering your interest allows our team to notify you when studies become available that match your medical profile.
Your participation could help accelerate the development of new treatments for Sickle Cell Warriors around the world.
Sign Up for Clinical Research Opportunities
Are You Looking for a Sickle Cell Disease Clinical Trial Site?
Partner With the Foundation for Sickle Cell Disease Research
FSCDR is a trusted leader in sickle cell research, offering a streamlined and efficient environment for conducting clinical trials.
We partner with pharmaceutical companies, academic institutions, and research sponsors to accelerate the development of new therapies.
FSCDR Offers
- Quick IRB Approval
- Quick Budget Approval
- Quick Contract Negotiation and Approval
Why Select the Foundation for Sickle Cell Disease Research?
Less Bureaucracy
More Efficient Trials
Our experienced research infrastructure helps sponsors move studies forward faster while maintaining the highest standards of patient safety and regulatory compliance.
Contact Our Research Team
Organizations interested in conducting clinical trials with FSCDR can reach out to our team for partnership opportunities.