Weekly Journal of Sickle Cell Disease Publication Update
Stay current with the latest sickle cell research, regulatory updates, and guidelines.
Ciliary protein ARL13b detected on RBCs as a potential indicative biomarker of vaso-occlusive crisis and disease severity in SCD: a retrospective pilot study
To evaluate whether red blood cell (RBC)-bound ADP-ribosylation factor-like protein 13b (ARL13b), a cilia-associated protein, is associated with future vaso-occlusive crises (VOC) and disease severity in sickle cell disease (SCD),...
Criterion validity of the functional status and pain assessment scale versus pain and length of stay in hospitalized adults with SCD
To evaluate the criterion validity of the Functional Status Pain Assessment (FSPA), a 10-item functional assessment tool, by examining its relationship with pain intensity and hospital length of stay (LOS)...
Diphenhydramine is not associated with poor outcomes among hospitalized people with sickle cell disease
To evaluate whether intravenous (IV) diphenhydramine use is associated with new-onset acute chest syndrome (ACS) among adults hospitalized for vaso-occlusive episodes (VOE), while adjusting for inpatient opioid exposure.
Outcomes of a Sustained Multi-Disciplinary Advisory Group in Advancing Sickle Cell Care and Research
To describe the outcomes of a sustained, collaborative, long-term multidisciplinary health provider andcommunity advisory group focused on improving sickle cell disease (SCD) care, education, and research.
Cerebral Microhemorrhages in a Mouse Model of Sickle Cell Disease
To investigate cerebral microvascular injury in a humanized mouse model of sickle cell disease (SCD) and examine the relationship between cerebral microhemorrhages (CMHs) and mast cells.
Protocol for a Multisite Trial Evaluating Digital Cognitive Behavioral Therapy With and Without Peer Support Among Adolescents and Young Adults With Chronic Sickle Cell Pain
To evaluate digital cognitive behavioral therapy (CBT) versus usual care for reducing pain intensity and pain interference among adolescents and young adults with sickle cell disease (SCD), and to compare...
Kyphoplasty for Vertebral Body Fractures in Sickle Cell Hemoglobinopathy: Case Report
To describe the use of kyphoplasty for management of vertebral compression fractures and chronic spinal pain in a patient with sickle cell disease (SCD)–associated osteonecrotic spinal pathology.
Psychosocial Neglect and the Rise in Psychosis Among Adults With Sickle Cell Disease in Little Caribbean, NY
To evaluate the prevalence of psychosocial neglect and patterns of under-recognized psychosis among young adults with sickle cell disease (SCD) and to examine their impact on treatment, pain reduction, and...
A Standardized Sickle Cell Admission Order Set in the Electronic Medical Record to Improve Outcomes in Patients With Sickle Cell Pain Crisis: A Quality Improvement Project
To evaluate whether implementation of a standardized electronic medical record (EMR) admission order set could improve hospitalization outcomes for patients admitted with sickle cell pain crisis.
Clinical Predictors for the Variability of Urine Albumin Concentration in Patients With Sickle Cell Disease
To investigate whether vaso-occlusive episodes (VOE) and other clinical factors influence variability in urine albumin-to-creatinine ratio (UACR) in patients with sickle cell disease (SCD).