Research and Data Insights
Primary care physicians are essential partners in back-to-school preparation for students living with sickle cell disease.
Key responsibilities include:
- Annual Review and Update of Care Plans: Review and update each child’s Individualized Healthcare Plan (IHP) and Emergency Care Plan (ECP) before school starts. Ensure that current medications, emergency contacts, pain/fever management steps, and recommendations for physical activity and attendance are clearly documented.
- Immunizations and Preventative Health: Confirm all immunizations are current, emphasizing annual influenza vaccination and other recommended vaccines specific to SCD. Review the need for ongoing prophylactic antibiotics and routine screening tests such as transcranial Doppler (TCD) ultrasounds.
- School Communication and Documentation: Provide clear medical documentation for families to share with school nurses and staff, including diagnosis, baseline status, typical symptoms, warning signs, and directions for when to seek emergency care. Encourage parent or guardian authorization for school staff to communicate directly with your office if issues arise.
Resources for Primary Care Physicians: CDC Tips for Supporting Students with Sickle Cell Disease
Myth vs. Fact
Myth: Children with sickle cell disease should not participate in regular school activities or gym classes.
Fact: With appropriate planning and support, many students with sickle cell disease can safely participate in school activities, including physical education, if care plans are in place to monitor for dehydration, pain, or fatigue. Individualized Healthcare Plans (IHPs) help ensure safe participation through tailored accommodations and timely interventions.
Resource: Individualized Healthcare Plans (IHPs)—Promoting Health and Learning for Students With Complex Needs