Research and Data Insights
Public health professionals contribute to sickle cell disease management through education and awareness. In fact, public health initiatives aim to increase knowledge and awareness among those affected by sickle cell disease
Community health workers play a vital role in supporting sickle cell disease patients through multifaceted care. This includes:
- Individual level: Promoting lifestyle changes, medication adherence, and coping strategies
- Family level: Addressing social determinants of health and educating about reproductive choices
- Healthcare system level: Assisting with appointment navigation and transportation
- School/work level: Coaching patients on requesting accommodation
Source: Community Health Workers as Support for Sickle Cell Care
Myth vs. Fact
Myth: Public health professionals have a limited role in sickle cell disease care.
Fact: Public health professionals are instrumental in advancing sickle cell disease care through initiatives like universal newborn screening, health maintenance guidelines, and advocacy for accessible healthcare.
For example:
- All U.S. states now conduct newborn screening for sickle cell disease, enabling early diagnosis and treatment.
- Public health programs promote adherence to vaccination schedules and penicillin prophylaxis to prevent infections in children with sickle cell disease.
Resource: CDC’s Prevention and Treatment of SCD Complications