Myth: Care coordinators, including nurses, are not essential — patients or families can manage coordination on their own.
Myth: Comprehensive sickle cell disease care can be effectively managed by a single provider without the need for a multidisciplinary or team-based approach.
Myth: The transition from pediatric to adult healthcare is typically unimportant and has little impact on an adolescent’s overall development.
Myth: Primary care has a limited role in sickle cell disease care.
Myth: General clinical training is enough; there’s no need for disease-specific workforce development in sickle cell care.
Myth: Technology like telemedicine or digital tools doesn’t impact sickle cell disease care.
Myth: There are no new learning opportunities or advanced training programs for clinical providers in sickle cell disease care.
Myth: Only bone marrow transplants from matched donors can cure sickle cell disease.
Myth: Gene therapy for sickle cell disease is science fiction and not available to patients.
Myth: Public health efforts cannot reduce gaps in sickle cell disease care.