Sharing Personal Stories: Joao and Devonte
Myth: Gene therapy for sickle cell disease is science fiction and not available to patients.
Surveillance and Monitoring
Myth: Public health efforts cannot reduce gaps in sickle cell disease care.
Healthcare Access and Transition Support
Myth: Workforce development programs for sickle cell disease are unnecessary because existing healthcare training is sufficient.
Education, Awareness, and Multifaceted Care
Myth: Public health professionals have a limited role in sickle cell disease care.
Newborn Screening and Social Support
Myth: Community health workers are not qualified to support sickle cell disease care.
Addressing Sickle Cell Disease Knowledge and Infection Control
Myth: Standard infection control measures are sufficient for sickle cell disease patients.
Addressing Transiting to Adult Care and whether Sickle Cell Disease is Contagious
Myth: Sickle Cell Disease is a contagious blood-borne illness.
Addressing Absenteeism and Hydroxyurea
Myth: Hydroxyurea is only for patients with severe sickle cell disease.
Pain Management and a Prepared Workforce
Optimal sickle cell disease treatment requires a multidisciplinary team delivering comprehensive care.