Blog

The Role of Nurse Coordinators in Sickle Cell Disease Care

07.30.25

Myth: Care coordinators, including nurses, are not essential — patients or families can manage coordination on their own.

Best Practices for Improving Healthcare Accessibility for Sickle Cell Disease Patients

07.23.25

Myth: Comprehensive sickle cell disease care can be effectively managed by a single provider without the need for a multidisciplinary or team-based approach.

Transitioning Patients with Sickle Cell Disease to Adult Care

07.16.25

Myth: The transition from pediatric to adult healthcare is typically unimportant and has little impact on an adolescent’s overall development.

The Need for Primary Care Physicians and Nurses in Sickle Cell Disease Care

07.9.25

Myth: Primary care has a limited role in sickle cell disease care.

The Need for Nurses and Community Health Workers in Sickle Cell Disease Care

07.2.25

Myth: General clinical training is enough; there’s no need for disease-specific workforce development in sickle cell care.

Real-World Impact of Well-Trained Providers

06.25.25

Myth: Technology like telemedicine or digital tools doesn’t impact sickle cell disease care.

Sharing Personal Stories: Kelsey and Shandrea

06.18.25

Myth: There are no new learning opportunities or advanced training programs for clinical providers in sickle cell disease care.

Sharing Personal Stories: Nicholas and Kellyn

06.11.25

Myth: Only bone marrow transplants from matched donors can cure sickle cell disease.

Sharing Personal Stories: Joao and Devonte

06.4.25

Myth: Gene therapy for sickle cell disease is science fiction and not available to patients.

Surveillance and Monitoring

05.28.25

Myth: Public health efforts cannot reduce gaps in sickle cell disease care.