Evaluate preliminary validity of a daily functional status pain assessment (FSPA) tool for adults with sickle cell disease (SCD) during vaso-occlusive crises (VOCs), with the aim of enhancing discharge readiness...
To identify hematological, biochemical, and metabolic biomarkers associated with sickle cell anemia (SCA) severity and to assess machine learning models' ability to predict disease severity accurately.
Assess prevalence of nocturnal hemoglobin desaturation (NHD) among adults with severe sickle cell disease (SCD) who receive chronic red blood cell exchange (RCE) transfusions.
To examine the relationship between Adverse Childhood Experiences (ACEs) and asthma among children and adolescents with Sickle Cell Disease (SCD).
Retrospective study reviewed 81 pediatric SCD patients referred for polysomnography to explore factors associated with nocturnal hypoxemia (NH), independent of obstructive sleep apnea (OSA).
A recent study explored real-world experiences from a single-center case series of adults with sickle cell disease transitioned from full opioid agonists to buprenorphine for chronic pain management.
Primary care physicians are essential partners in back-to-school preparation for students living with sickle cell disease.
Community Health Workers play a vital role in supporting families of children with sickle cell disease as they transition back to school by providing personalized education and outreach.
Myth: Care coordinators, including nurses, are not essential — patients or families can manage coordination on their own.
Myth: Comprehensive sickle cell disease care can be effectively managed by a single provider without the need for a multidisciplinary or team-based approach.