Research and Data Insights
The article below focuses on the crucial role of nurse coordinators in sickle cell disease care. It presents a qualitative overview of how nurse coordinators serve as a bridge between patients and the often-fragmented healthcare system to improve care for individuals with sickle cell disease.
Sickle Cell Nurse Coordinators Bridging the Gap for the Future
The article below provides an in-depth look at how the New York City Department of Health and Mental Hygiene (NYC DOHMH) has taken a leadership role in advancing sickle cell disease care and addressing health policy at the municipal level.
The Role of Municipal Department of Health in Advancing Sickle Cell Disease Care and Policy: Lessons
Myth vs. Fact
Myth: Care coordinators, including nurses, are not essential — patients or families can manage coordination on their own.
Fact: Effective sickle cell disease care requires nurse coordinators and multidisciplinary teams. Nurse coordinators play a crucial role in navigating the complex healthcare system, ensuring communication among providers, and supporting patients with education, advocacy, and access to resources. Their involvement significantly improves care quality and patient outcomes, especially given the chronic and complex nature of sickle cell disease.