The Patient Experience
Mimi’s Story – The Value of Provider Trust and Responsiveness
Mimi has faced both dismissive and exemplary care throughout her sickle cell disease journey. She describes how rapid intervention and providers who know her history make a significant difference during pain crises. Her story illustrates the critical role of provider knowledge, trust, and timely action in improving patient experiences and outcomes.
Personal Accounts of FSCDR Patients:
“Every staff is patient; understanding and treats you like an individual. The provider is very thorough. I learned so much about the disease process and what triggers it. I am very happy and blessed to be patient here. I HIGHLY recommend this doctor and his facility.”
— Gina C.
Myth vs. Fact
Myth: Technology like telemedicine or digital tools doesn’t impact sickle cell disease care.
Fact: Digital health tools-including telemedicine, wireless devices, and text messaging-are transforming sickle cell disease care.
Research shows these technologies improve pain management, help prevent crises, and strengthen patient-provider communication, especially for adolescents and young adults. For example, wireless technology enables timely symptom management and education, while telemedicine expands access to specialists and supports better patient outcomes.
Join our upcoming training to learn how to integrate the latest digital tools and telemedicine strategies into your sickle cell disease care. Gain practical skills, connect with experts, and discover innovative approaches that can make a real difference for your patients.
Register for FSCDR Workforce Education