{"id":623659,"date":"2023-02-20T09:34:59","date_gmt":"2023-02-20T09:34:59","guid":{"rendered":"https:\/\/www.fscdr.org\/current-members\/?page_id=623659"},"modified":"2023-03-13T21:54:15","modified_gmt":"2023-03-13T21:54:15","slug":"the-respect-program","status":"publish","type":"page","link":"https:\/\/www.fscdr.org\/current-members\/the-respect-program\/","title":{"rendered":"THE RESPECT PROGRAM"},"content":{"rendered":"

[vc_row el_class=”about-mission-sec mobile-view-banner respect-banner” css=”.vc_custom_1676899167527{background-image: url(http:\/\/www.fscdr.org\/wp-content\/uploads\/2019\/05\/about-bg-patern.jpg?id=137) !important;}”][vc_column][vc_custom_heading text=”THE RESPECT PROGRAM” font_container=”tag:h1|text_align:center” use_theme_fonts=”yes”][\/vc_column][\/vc_row][vc_row][vc_column][vc_row_inner el_class=”program-padding-fix-block”][vc_column_inner width=”1\/4″][vc_single_image image=”623662″ img_size=”full” alignment=”center”][\/vc_column_inner][vc_column_inner width=”3\/4″][vc_custom_heading text=”The RESPECT PROGRAM<\/b>” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_column_text]Honoring Legacies of Dr. Paul Swerdlow & Sickle Cell Caregivers A Memorial Program to Support Patients and Student Scholars.<\/p>\n

The FSCDR & Phoenicia BioScience and are sponsoring<\/strong> a Student Scholar and My Sickle Cell Health Passport Program and to carry on traditions of Sickle Cell Specialists who touched many lives.<\/p>\n

My Sickle Cell Health Passport<\/strong> will be pilot-tested by teen and young adult patients as an aid to help learn about essential care and to facilitate their own care in medical facilities new to them, or where the complexities of sickle cell disease are not well known.<\/p>\n

The Program will also fund Summer Scholarships for high school and college students to learn about sickle cell disease, the important roles provided by different medical caregivers, and promote RESPECT for all persons living with sickle cell disease. The Program will provide a stipend for shadowing in Sickle Cell Treatment programs, using the Passport as a guide.<\/p>\n

To Support Students Scholars and this Program:<\/strong> Donations can be made to the FSCDR, designated for the RESPECT PROGRAM<\/strong><\/p>\n

Founding Donors:Carolyn & Julie Swerdlow, Yutaka Niihara MD, Susan & Cynthia Perrine, Phoenicia BioScience<\/strong><\/p>\n

To learn more, donate, or apply:<\/strong> lbronte@fscdr.org;<\/a> kthorpe@fscdr.org<\/a>, sperrine@bu.e<\/a>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row css=”.vc_custom_1676899747625{margin-bottom: 10px !important;}”][vc_column][vc_separator][\/vc_column][\/vc_row][vc_row][vc_column][vc_row_inner el_class=”program-padding-fix-block”][vc_column_inner width=”1\/4″][vc_single_image image=”623796″ img_size=”full” alignment=”center”][\/vc_column_inner][vc_column_inner width=”3\/4″][vc_custom_heading text=”Paul Swerdlow MD Sickle Cell Specialty Physician & Scientist \u201cExtraordinaire\u201d<\/b>” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_column_text]Dr. Swerdlow had lifelong dedication to his patients with sickle cell disease.
\n<\/strong>
\nHe obtained his MD from the Harvard-MIT Program in Health Science and was Professor of Medicine & Pediatrics, Hematology Oncology, Wayne State University, and previously Director, Comprehensive Sickle Cell Center, Virginia Commonwealth University. He was on the Medical Staff of Karmanos Cancer Institute, Children\u2019s Hospital of Michigan, and 3 other hospitals.<\/p>\n

He directed research, was Investigator on >20 clinical trials, and served on the Advisory Council for Sickle Cell Disease to the NIH\/NHLBI, and as Reviewer for NIH & the FDA Office of Orphan Product Development.<\/p>\n

He compassionately cared for 3 generations of patients and devoted his clinical teaching of medical students, residents, and Hematology Fellows to improve patients\u2019 lives.<\/strong><\/p>\n

Dr. Wally Smith, a Leader and Authority on pain, credits Dr Swerdlow for requesting his expertise for the VCA Sickle Cell Program and introducing him to the field.<\/p>\n

Dr. Swerdlow always referred to his patients as \u201cour women, our men, and our children\u201d<\/strong>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row el_class=”red-title”][vc_column][vc_custom_heading text=”Honoring Legacies of Physicians who Inspired” font_container=”tag:h1|text_align:center” use_theme_fonts=”yes”][vc_custom_heading text=”Collaboration, Discovery, Teaching, & Dedicated Service to Patients Around the World” font_container=”tag:h2|text_align:center” use_theme_fonts=”yes”][vc_row_inner el_class=”program-padding-fix-block”][vc_column_inner width=”1\/4″][vc_single_image image=”623765″ img_size=”full” alignment=”center”][\/vc_column_inner][vc_column_inner width=”3\/4″][vc_column_text]Samir Ballas MD, Distinguished Physician, Scholar, Advocate, Emeritus Professor of Medicine, Pediatrics, Transfusion Medicine, Thomas Jefferson School of Medicine, Director, Sickle Cell Program, Masterful Advocate of Compassion<\/strong><\/p>\n

Originally from Palestine, Dr. Ballas attended college and American University of Beirut School of Medicine in Lebanon on United Nations scholarships. Devoted to patients living with sickle cell disease from his first lecture, he obtained US Medical Boards in 3 specialties, authored > 700 papers, was a lifelong Advocate & Ambassador for patients, always analyzing and translating medical needs and therapies. His daughter relates his dedication was so constant, \u201cSickle Cell Disease was \u2026. like a family member. He knew every patient\u2019s life story & wanted every patient to be respected and heard\u2026 with compassion.\u201d Dr. Ballas encouraged many hematologists in their career development.[\/vc_column_text][vc_video link=”https:\/\/www.youtube.com\/watch?v=BOhY_gJoG1s” align=”center”][\/vc_column_inner][\/vc_row_inner][vc_row_inner content_placement=”middle” el_class=”program-padding-fix-block”][vc_column_inner width=”1\/4″][vc_single_image image=”623702″ img_size=”full” alignment=”center”][\/vc_column_inner][vc_column_inner width=”3\/4″][vc_column_text]Kwaku Ohene-Frempong MD, KOF, Physician, Professor, Ambassador, Olympian. Tulane and University of Pennsylvania School of Medicine, Children\u2019s Hospital of Philadelphia, directed a leading US Sickle Cell Program<\/strong><\/p>\n

KOF always brought key insights and concerns about sickle cell disease to teaching, comprehensive care, and international medical attention. He served as an Ambassador, bringing current practices back to his home country of Ghana. KOF brought together and fostered research scientists, physicians, caregivers, and trained many Leaders in the field. He was also a historian, Ghanaian traditionalist, and entrepreneur.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner content_placement=”middle” el_class=”program-padding-fix-block”][vc_column_inner width=”1\/4″][vc_single_image image=”623766″ img_size=”full” alignment=”center”][\/vc_column_inner][vc_column_inner width=”3\/4″][vc_column_text]Richard Perrine MD, D. Trop. Med, discovered patients living long lives with sickle cell disease and high fetal hemoglobin<\/strong><\/p>\n

After obtaining his MD and D. Trop Med & Hyg. at UCSF School of Medicine & Univ. of Liverpool, he cared for underserved patients in California, Hawaii, Guam, Virginia, and Saudi Arabia as Chief of Internal Medicine for Aramco, where he discovered patients with sickle cell disease & high HbF, living healthy, into older age in an era and region high-risk for deadly infections and early mortality. The HbS gene conferred a survival advantage vs severe malaria. He often spoke fondly about the dignity of his patients when teaching young physicians.<\/p>\n

With Oxford Professors Sir David Weatherall, Bill Wood, & Doug Higgs<\/strong>, they discovered genetic changes causing HbH and high HbF, now a basis for therapies. In other efforts, he founded the country\u2019s first Cardiac Care Unit, brought Pnemovax to Middle East patients, and with M. Pembrey produced a Bronze award-winning documentary film on sickle cell disease, distributing it to UK and US medical schools.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row el_class=”red-title”][vc_column][vc_custom_heading text=”My Sickle Cell Health Passport for Patients & Guide for Student Scholars” font_container=”tag:h1|text_align:center” use_theme_fonts=”yes”][vc_row_inner][vc_column_inner][vc_single_image image=”623673″ img_size=”full” alignment=”center”][vc_column_text]<\/p>\n